Prayers for a special boy

I covet your prayers for a dear little friend of ours. His name is Andrew and he is one amazing kid. His mom, Amy, is amazing as well. MB and I met Andrew in nephrology clinic a few years ago. Andrew, like MB, was born in renal failure and was on dialysis and had an NG tube. Unlike MB, Andrew has some other complications, one in particular called Prune Belly Syndrome. Basically he has no stomach muscles. (He's the cutest little Buddha belly you ever did see!). Kids with PBS don't usually live to see 2, but Andrew has. This kid, as I said, is remarkable. He has been, however, scaring the begeebies out of us for some time now.

I was blessed to be able to help Amy through the dialysis at home, giving her hints about the NG tube and trying to get the kiddos to eat and prayed with her through the transplant (she gave Andrew a kidney last August). We have laughed, cried and complained to one another from the first time I called her to just check in till today.

MB has doctor visits once per month to make sure his kidney (Given by his daddy 3 years ago in August and doing great) is working well, and it is. But because I know Amy and Andrew so well, I can always ask about them and I have permission to get information (thanks Amy). So when we went to the doc on Thursday we found out Andrew was in. In the last 3 months I think Andrew has been out of the hospital maybe 3 weeks total. It is NOT easy to be a hospital mom with a kid that is regularly inpatient (thankfully, and by the grace of God, MB has not been in for about 2 years now I think, maybe one short dehydration visit last winter, but I really can't remember, but before that, we LIVED at Vanderbilt Children's Hospital). SO we went to visit Amy and Andrew after MB's visit.

Andrew LIT UP when MB walked in the room. He can not talk, but he about jumped out of crib when he saw MB. He LOOOOOVVES MB. We bring treats. LOL. He blows kisses to MB and holds hands and hugs him. Awesome stuff.

The prayers for Andrew come in because the last 3 visits to VCH have been because of severe breathing (and one blue baby) incidents. Poor Amy is about at her end of herself (focus on the good stuff girl...the good stuff). They told her yesterday that 2 docs have now walked in on Andrew during sleep apnea events...of the severe nature. They are doing some tests on him and will probably have to do surgery. He also has some reflux issues causing, they believe, fluid aspiration in his lungs (when he has reflux, instead of going back down, it's going in his lungs, not good..causes pneumonia). So he's a sick little boy right now. They are talking about doing 3 potential surgeries on this little guy. Amy is sick, as any mom would be.

SO I ask for prayers for this very precious little guy who has an AMAZING will to live. The surgeries are dangerous because he is immunosuppressed to keep the kidney functioning. These kiddos (mine included) are a heck of a lot more fragile than they appear.

Pray the docs will lead Amy in the right direction.
Pray Amy will KNOW what is right for her son.
Pray Andrew will continue to fight.

Amy was supposed to meet another mom with Prune Belly Syndrome that is 12 years old, but she left before Amy got there. If you know of anybody else who's child has this, please message me if they are willing to talk to Amy. It is through comfort of others in the same situation we find our strength. I sure do appreciate it. And thanks for the prayers.